Tuesday, August 15, 2006

Teen with RSD finds some relief

NJ.com, originally uploaded by rsdscrpsnews.

Teen with RSD finds some relief

Monday, August 07, 2006
By Bob Shryock

A series of fund-raisers helped send Mickleton teenager Lindsay Wurtenberg to Germany in 2004 for ketamine-coma treatment for Reflex Sympathetic Dystrophy (RSD), a mysterious chronic pain disease for which there is limited help available in the United States.

Once in full remission and now in partial remission, Lindsay's struggles have spawned the Lindsay Wurtenberg RSD Foundation -- designed to assist other RSD patients who need to travel to Germany for the same treatment.

The third annual Lindsay Wurtenberg Golf Outing is scheduled for Saturday, Oct. 12, at Valleybrook Country Club in Blackwood with an 8 a.m. shotgun start. Cost is $80 per golfer. Those who wish to enter or offer sponsorship can contact the Foundation at hopeful@rsdbreathe.com or by mail at 406 Greenwich St., Mickleton, NJ 08056. Organizers are looking for hole ($100) and tee sponsors ($100) and door prizes.

Lindsay was in a wheelchair and required assistance for even small tasks two years ago when stabbing pain attacked her body.

"Fortunately, Lindsay was given the opportunity to travel to Germany to receive an infusion of ketamine, which caused her to be in a comatose state for five days," said her mother, Elaine. "When she awoke, her RSD pain was gone. She was in remission. Although her full remission did not last, she has been in partial remission with relapses in her right leg and arm, back and neck. When needed, she receives low-dose ketamine booster infusions as an out patient."

A year ago, the golf tournament raised funds to help another young woman who needed the same treatment in Germany. And the Wurtenbergs hope this year's event can help yet another patient in pain.

Said Elaine, "Lindsay's goal is to raise enough money to assist at least one patient each year who needs to go to Germany."

Lindsay, a junior at Kingsway Regional High School, will be 17 on Oct. 7. Her mother now classifies her improving health as "an 812 to a 9" on a 1-to-10 scale.

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